Domo Goes to the Hospital

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About this time last year my son was in the hospital having a video EEG that lasted 7 days.  His head was wrapped up tight with wires and gauze.  He was not quite 5 and needed to be still.  

Boy + 5 = NOT STILL!  He luckily found Domo at 7-11 dressed up in a pumpkin for the Fall, so off to the hospital Domo went with us.  Whatever lil guy had done, so did Domo: blood pressure, pulse ox, head wrap and of course STICKERS! My lil guy had his buddy going through just what he was and it gave him an opportunity to help Domo be brave. 
Our children can be resilient when given the tools and the opportunity to be successful. Does it happen EVERY time? NOWAY!  There's going to be tears, screaming and getting frustrated ...not to mention what the kids will do! We shouldn't stop trying. We should always set an environment for our child to build on the next time they have a challenge and need to be brave. They will know they have another chance be the bravest of them all.





What have I been doing...

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I think back over the last twelve years or so to what has brought me to where I am today. The reasons that have contributed to me dropping the best pieces of me along the way. I know ultimately it has been my own fault for not holding on to these things beyond my faith and family that gave me joy, I have to accept my responsibility in this. But when I look back, I think what have I been doing?

I think my answer to that is taking care of my kids. I'm being a mom to two incredible kids who need little extra sometimes. I'm talking about kids with medical issues and a special needs. My daughter was born with a complex congenital heart defect and has 2 stents. She will always need work on her heart, it will be a life long process for her. She was diagnosed while I was 5 months pregnant. My son James is still in the diagnostic process. We know for certain he has Epilepsy, developmental delays and prominent Autistic traits. He works really hard at Speech, OT, PT and social skills. I guess me being diagnosed with Epilepsy 10 months after my son has been a big part of our lives, as well. Even though this may seem overwhelming and at times it can be, I feel like we are doing OK!

I know I will be alright because...

God wanted me to have these children...He knew I needed these children. The children that would help me value the very life He had given us all. I always think of "Punkin Doodle" coming into our lives as a revealing of a part of myself that I never knew I could be, but God knew. Once I knew that loving a child was so boundless, I couldn't wait for my "lil guy", but wait we did. When years later he came along, he was an answered prayer. We prayed so hard for him and although he now faces challenges, I will not complain about this answered prayer of mine because our Heavenly Father will reveal himself once again.

"Love is patience, Love is kind"....love is what we have.

~Kim